The story behind Cure Rare Disease is very personal.
My younger brother, Terry, has Duchenne muscular dystrophy (DMD).
In fact, only 5% of rare diseases have any treatment.
And so, we are changing the paradigm of how rare and ultra-rare diseases are treated.
You grew up playing video games with your brother Terry, what games did you both play?
My brother has since moved into titles like Escape from Tarkov, though we still both enjoy classic games.
What inspired the idea of using the power of the gaming community to raise funds?
In fact, there are many creators who are impacted by rare diseases.
Could you share the concept of how gaming ambassadors can assist with the process of raising funds?
Every dollar raised brings more awareness and more support to families battling for their loved ones life.
We have a number of great streamers on board.
People interested in learning more should visit www.cures.gg and interested streamers cansign up at this link.
We are offering fun incentives for streamers who raise differing amounts.
Its really important to us that everyone who participates is recognized and thanked for their efforts!
What made you believe that you could make a difference?
I dont come from a particularly wealthy or influential background I put myself through business school.
Standing by wasnt an option for us.
So, I did what I could do in the place where I was.
Fortunately for me, the place where I happened to be at the time was Harvard Business School.
Thus, Cure Rare Disease was born.
A drug using CRISPR technology is being developed, could you share some details on this?
We are both excited as well as extremely cautious.
Were excited by the idea of proving this framework out and scaling up from here.
Were able to move quicker because of the streaming community and the incredible work they do!
Is there anything else that you would like to share with our community?
Without their generosity, we would not be where we are today.
For readers interested in learning more about our streaming program, they can visit us online.
Similarly, we accept donations of all sizes online as well at https://www.cureraredisease.org/donate.
This is truly a cause where one person can make a world of difference.
